GET INVOLVED

Meet the SCN2A Warriors

Spread Awareness by Sharing Your Story

These personal pages are a way for you to share your child's story. Once created you can share the page with friends and family to help raise awareness about Autism and Epilepsy.

Pages can also be used to help raise funds for The FamilieSCN2A Foundation. Your generous donations will go directly toward research, awareness, and to provide educational and emotional support for patients and families by connecting them with other families affected by SCN2A.

Click here to begin creating your Personal Page. Once submitted, you will receive a link to your child's Personal Page. All information submitted will be processed within two weeks of being received.

scn2a
scn2a gene

International SCN2A Awareness Day

What’s the significance of SCN2A Day being 2/24 (February 24th)?

Located on the long (q) arm of chromosome 2 at position 24.3 the SCN2A is sodium channel, voltage gated, type II alpha subunit. Sodium ion channels are proteins in cells that allow sodium to pass to the inside. Sodium ion channels play a key role in a cell's ability to generate and transmit electrical signals. When there is a deletion or mutation of this gene it has been identified to cause autism, epilepsy and other neurological issues like movement disorders, dystonia and dsyautonomia to name just a few.

SCN2A Awareness Day will help us accomplish the FamilieSCN2A Foundation mission to improve the lives of those affected by SCN2A related disorders through research, public awareness, family support and patient advocacy.

We proclaimed 2/24 as the official SCN2A Awareness Day in 12 states – only 38 to go! To start the proclamation process in your state, email Leah.Schust@scn2a.org.

 AWARENESS DAY VIDEO    2024 PROCLAMATIONS

SCN2A Facts

DIY Fundraiser

Creating a personal campaign page gives you a chance to do something small, but make a big impact. You can spread the word about SCN2A-related disorders and get your friends and family to rally behind a cause close to your heart. How you might ask, would I do this?

A FEW IDEAS (but we encourage creativity!)
  • » Donate your birthday by asking everyone who was going to buy you a gift to donate to your personal fundraiser page instead!
  • » Do you have an upcoming wedding or another major celebration? Ask your inner circle to put their gift money to good use and donate to your fundraiser!
  • » Run/walk/ride your own mini-marathon – do it outside the house OR you can do it indoors on a treadmill or a stationary bike!
  • » Record yourself breaking a personal record doing an activity that you love and ask spectators to donate to the cause you love!
  • » Any other creative idea!

Create your Fundraiser page today! Need help or ideas, contact Leah.Schust@scn2a.org.

DIY Fundraisers

Other Ways to Get Involved

scn2a mutation

Whatever you decide, please let us know. We are here to support you with ideas, resources and more. Check out the FamilieSCN2A Fundraising Page on facebook to see how others have helped.

FUNdraising

FUNdraising is not only about money, it also raises public awareness of SCN2A and the issues around rare diseases in general.

Raise Awareness

Share your story with friends and family, in private and/or through social media. Share our website with them.

Donate

Make a tax deductible donation directly to the FamileSCN2A Foundation to be used for raising awareness, research and supporting families

Raise Funds

Sign up with iGive, an automated program that donate a portion of online sales to charity.

Have a Party!

There are many direct sales vendors who would be happy to do a fundraiser for you.

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We are a registered 501(c)(3) organization, so your donations are tax deductible!

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 Newly Diagnosed?
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Our goal is to find a cure!

Did you or your child just receive a new diagnosis of SCN2A? If so, please know you are not alone!