FamilieSCN2A Foundation

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International SCN2A Awareness Day

What’s the significance of SCN2A Day being 2/24 (February 24th)?

Located on the long (q) arm of chromosome 2 at position 24.3 the SCN2A is sodium channel, voltage gated, type II alpha subunit. Sodium ion channels are proteins in cells that allow sodium to pass to the inside. Sodium ion channels play a key role in a cell's ability to generate and transmit electrical signals. When there is a deletion or mutation of this gene it has been identified to cause autism, epilepsy and other neurological issues like movement disorders, dystonia and dsyautonomia to name just a few.

SCN2A Awareness Day will help us accomplish the FamilieSCN2A Foundation mission to improve the lives of those affected by SCN2A related disorders through research, public awareness, family support and patient advocacy.

Create A Personal Page For Your Child!

These personal pages are a way for you to share your child's story. Once created you can share the page with friends and family to help raise awareness about Autism and Epilepsy.

Pages can also be used to help raise funds for The FamilieSCN2A Foundation. Your generous donations will go directly toward research, awareness, and to provide educational and emotional support for patients and families by connecting them with other families affected by SCN2A.

Fill in the form below to begin creating your Personal Page. Once submitted, you will receive a link to your child's Personal Page. All information submitted will be processed within two weeks of being received.

View Current Personal Pages

Harry Kennedy & Raegan Nikol Athena Marty Mateo Zachariah Benjamin Emily Gianna Hudson Levi Mark Quintin

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Make a Donation

We are a registered 501(c)(3) organization, so your donations are tax deductible!

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Newly Diagnosed?

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Enter Personal Page Information

* Your Name

* Email

* Address

* City

* State

* Zip Code

* Child's Name

* Child's Date of Birth

* Child's Fun Fact

* Additional Diagnosis (If none please enter 'none')

* Variant

Bio/Story *

Upload Image of Your Child Maximum upload file size: 12 MB

Ways To Contribute

Whatever you decide, please let us know. We are here to support you with ideas, resources and more. Check out the FamilieSCN2A Fundraising Page on facebook to see how others have helped.

FUNdraising

FUNdraising is not only about money, it also raises public awareness of SCN2A and the issues around rare diseases in general.

Raise Awareness

Share your story with friends and family, in private and/or through social media. Share our website with them.

Donate

Make a tax deductible donation directly to the FamileSCN2A Foundation to be used for raising awareness, research and supporting families

Raise Funds

FirstGiving

Set up your own ‘First Giving’ page through the foundation to collect online donations.

Have a Party!

There are many direct sales vendors who would be happy to do a fundraiser for you.

Our goal is to find a cure!

Did you or your child just receive a new diagnosis of SCN2A? If so, please know you are not alone!