RX: Hope Seminar Series

Although disappointed we will not be able to gather in person this year due to COVID-19, we are excited to offer the Rx: Hope Virtual Series. The results of our survey showed the community is experiencing Zoom and live webinar fatigue, so we will pre-record all presentations and you can view them from the safety and convenience of your own home, in your own time. Questions will be collected ahead of time and answers provided at the end of each presentation. The goal of this virtual series is to instill HOPE for our children's future.

The FamilieSCN2A Foundation lives by our mission statement and part of that mission is to provide educational and emotional support for those affected by SCN2A disorders. Our active online community serves as a source of comfort and strength. If you are not already a member, please request to join here: www.scn2a.org/global.html . We feel strongly that knowledge is power. Our hope is that by the end of the series you will feel empowered to advocate for the best possible quality of care for your child. It is hard to be the expert in your child's disease, so we welcome and encourage you to invite your treating clinicians to register and learn along with you.

When creating this virtual series we took into consideration the topics that were in highest demand from our community survey. In accordance with survey results, the five presentations in this series will focus on: research updates, understanding your child's specific genetic change, and the SCN2A specific therapeutic pipeline, including a realistic view and timeline of each of the new treatments in preclinical phases. The full, detailed agenda will be posted soon.

With registration, you will receive a care package filled with items to bring you a little joy and a lot of HOPE.

Our goal is to find a cure!

Did you or your child just receive a new diagnosis of SCN2A? If so, please know you are not alone!