Thanks to the generosity of our supporters, the FamilieSCN2A Foundation can carry out our mission to accelerate research, build community and advocate to improve the lives of those affected by SCN2A-related disorders around the world. Our vision is a world with effective treatments and cures for all SCN2A-related disorders.

Many companies match charitable donations made by employees in order to support a culture of giving and to extend corporate philanthropy. Often this may double or even triple your donation. The tool below will help you determine if your employer has a donation matching program. The FamilieSCN2A Foundation is registered as a tax-exempt public charity by the Internal Revenue Service under Section 501(c)(3). Our tax identification number is 47-3169795 If you have any questions regarding matching donations, please email

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Ways To Contribute

Whatever you decide, please let us know. We are here to support you with ideas, resources and more. Check out the FamilieSCN2A Fundraising Page on facebook to see how others have helped.


FUNdraising is not only about money, it also raises public awareness of SCN2A and the issues around rare diseases in general.

Raise Awareness

Share your story with friends and family, in private and/or through social media. Share our website with them.


Make a tax deductible donation directly to the FamileSCN2A Foundation to be used for raising awareness, research and supporting families

Raise Funds

Sign up with Amazon Smiles and iGive, automated programs that donate a portion of online sales to charity.

Have a Party!

There are many direct sales vendors who would be happy to do a fundraiser for you.

Our goal is to find a cure!

Did you or your child just receive a new diagnosis of SCN2A? If so, please know you are not alone!