Three SCN2A programs in development and their CIITIZEN partnership

by Shawn Egan, Ph.D. (parent to a child with SCN2A-DEE and extensive experience as a Biotech Equity Research Analyst)

Praxis Precision Medicines, Inc updated our SCN2A community on the status of their three SCN2A programs in development and ...

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Finding Your Voice

by Michelle Lewis, FamilieSCN2A Foundation Vice President

On a cold January morning during the first week of what, unbeknownst to me, would become a 5 month long stay at our local children’s hospital NICU, I was holding my daughter when I noticed......

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Our goal is to find a cure!

Did you or your child just receive a new diagnosis of SCN2A? If so, please know you are not alone!