Welcome to FamilieSCN2A

"Families" is part of our name for a reason. Rare and devastating, SCN2A-related disorders affect the entire family. Our team of leaders strive every day and in every way to improve the lives of not only the patients, but the entire family.

Our MISSION is to accelerate research, build community and advocate to improve the lives of those affected by SCN2A-related disorders around the world.

Our VISION is a world with effective treatments and cures for all SCN2A-related disorders.


We are a registered 501(c)(3) organization. Click here to learn more about us.

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Do you have a special talent or skill you would like to share with the FamilieSCN2A Foundation? Are you willing to donate your time toward supporting our mission and vision? If so, volunteering is a great way to get involved.

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 Join our Global Family Network

If your child has a SCN2A-related disorder, and you would like to join our private Facebook Group, fill out the Global Family Network form to start the process.

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 Our goal is to find a cure!
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 Newly Diagnosed?

Did you or your child just receive a new diagnosis of SCN2A? If so, please know you are not alone!

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International SCN2A Awareness Day

SCN2A Awareness Day (2/24/19) will help us accomplish the FamilieSCN2A Foundation mission to improve the lives of those affected by SCN2A related disorders through research, public awareness, family support and patient advocacy.

Ways To Contribute

Whatever you decide, please let us know. We are here to support you with ideas, resources and more. Check out the FamilieSCN2A Fundraising Page on facebook to see how others have helped.


FUNdraising is not only about money, it also raises public awareness of SCN2A and the issues around rare diseases in general.

Raise Awareness

Share your story with friends and family, in private and/or through social media. Share our website with them.


Make a tax deductible donation directly to the FamileSCN2A Foundation to be used for raising awareness, research and supporting families

Raise Funds

Sign up with iGive, an automated program that donate a portion of online sales to charity.

Have a Party!

There are many direct sales vendors who would be happy to do a fundraiser for you.

Connect / Support / Research

Did you or your child just receive a new diagnosis of SCN2A? If so, please know you are not alone!