Welcome to FamilieSCN2A
"Families" is part of our name for a reason. Rare and devastating, SCN2A-related disorders affect the entire family. Our team of leaders strive every day and in every way to improve the lives of not only the patients, but the entire family.
Our MISSION is to accelerate research, build community and advocate to improve the lives of those affected by SCN2A-related disorders around the world.
Our VISION is a world with effective treatments and cures for all SCN2A-related disorders.
Our Values are URGENCY, INTEGRITY, COLLABORATION, and INCLUSION.
We are a registered 501(c)(3) organization. Click here to learn more about us.Get Help Give Help Be a SCN2A Voice Current Newsletter Past Newsletters
CONNECT / SUPPORT / RESEARCH
Do you have a special talent or skill you would like to share with the FamilieSCN2A Foundation? Are you willing to donate your time toward supporting our mission and vision? If so, volunteering is a great way to get involved.Apply Now SCN2A Conference Email List Signup Donate Shop SCN2A Brochure
Join our Global Family Network
If your child has a SCN2A-related disorder, and you would like to join our private Facebook Group, fill out the Global Family Network form to start the process.Join Here
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Our goal is to find a cure!More About Us
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Did you or your child just receive a new diagnosis of SCN2A? If so, please know you are not alone!Learn More
Ways To Contribute
Whatever you decide, please let us know. We are here to support you with ideas, resources and more. Check out the FamilieSCN2A Fundraising Page on facebook to see how others have helped.
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