Participation in research is our greatest hope for better treatments and cures for all SCN2A-related disorders! To accelerate research, the best thing patients and their families can do is to learn about their SCN2A variant and available research projects. Here you will find educational resources on research and drug development processes, clinical trials, and SCN2A-specific projects. To stay up-to-date, please join our email list.

Clinical Trial Updates

1) Pre-screening for PRAX-562 Embold study now open! is live, allowing the opportunity for caregivers of those diagnosed with SCN2A and SCN8A DEE to see the inclusion and exclusion criteria and schedule a pre-screening call with a nurse navigator.

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2) Pre-screening for PRAX-222 Embrave study now open!

If you think your child may qualify for the PRAX-222 EMBRAVE study and would like to speak to a Nurse Patient Navigator to learn more, please schedule a pre-screening appointment by using the calendar function below.

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Our goal is to find a cure!

Did you or your child just receive a new diagnosis of SCN2A? If so, please know you are not alone!