Participation in research is our greatest hope for better treatments and cures for all SCN2A-related disorders! To accelerate research, the best thing patients and their families can do is to learn about their SCN2A variant and available research projects. Here you will find educational resources on research and drug development processes, clinical trials, and SCN2A-specific projects. To stay up-to-date, please join our email list.

Types of medical research & your participation

Clinical research is medical research involving people. Research asks volunteers to do something: Take a medication or complete a task while collecting information for and/or about them. Research provides scientists an effective way to find answers to important questions and to use that knowledge to create new treatments, and maybe a cure, for common and rare diseases. Every research study is different because researchers use different methods and study a wide range of topics. Some research might benefit you as a volunteer, while others may not. Taking part in research can be a rewarding experience but it is important to know what to expect before you decide to participate.

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Our goal is to find a cure!

Did you or your child just receive a new diagnosis of SCN2A? If so, please know you are not alone!