Education & Support
Living with an SCN2A-related disorder can be challenging. We believe in empowering the community with tools to enhance the quality of life for all affected by SRDs.
An important part of the FamilieSCN2A mission is to empower families to advocate for themselves in a world where SRDs are still not well known. Here we provide information to help navigate life with SRDs: from the annual conference to webinars on relevant topics to programs and events that celebrate and support our SCN2A warriors. Scroll on and don't miss the new 'Resources' page.
2025 International SCN2A
Family & Professional Conference
The most exciting and important event of the year is the world’s largest SCN2A-related gathering of families, researchers, clinicians, and industry. Bringing the SCN2A community together has a life-changing impact on all who attend.
Past Conferences
Since our founding in 2015, we have hosted seven conferences in person or hybrid and two virtually. Travel can be challenging for those with SCN2A-related disorders, so the conference sites rotate around the country. Check out our history of bringing people together.
- 2016—Chicago, IL
- 2017—Wilmington, DE
- 2019—Seattle, WA
- 2020—Rx: Hope Virtual Series
- 2021—Rx: Hope Table Talks
- 2022—Columbus, OH
- 2023—Boston, MA
- 2024—Anaheim, CA
- 2025—Denver, CO
RX: Hope (Virtual Series)
The ‘RX: Hope’ virtual series was launched in place of the SCN2A Family & Professional Conference in 2020. In 2021, a revised format was created with more intimate conversations between virtual attendees. Since then, the Virtual Series includes periodic installments of informative topics available in webinar format.
Patient Assistance
Grant Program
Raising a child is expensive but raising a child with special medical needs is VERY expensive and we would like to help.
The FamilieSCN2A Foundation sets aside a limited amount of funds each year to offer small grants to patients with SCN2A Disorders for necessary medical equipment,  therapy devices, and educational aids associated with these conditions that are not covered through private insurance or other assistance programs.
This program is open to all patients worldwide who meet the program requirements. The program closes each year on December 1st or once funds are depleted for that session. Any remaining funds are rolled over, with the program opening each year on International SCN2A Awareness Day, February 24.
Glossary of SCN2A and SCN2A-Related Disorders
A collection of terms that will be helpful to understand when learning about SCN2A-related disorders. It will unlock the scientific language used in research papers, scientific presentations, and conversations with clinicians and peers.
Programs and Events
FamilieSCN2A provides a variety of programs to support the needs of the SCN2A community, including the Global Family Support Network and Super Siblings Club. Throughout the year, the Foundation hosts and encourages opportunities for the SCN2A community to come together. Learn more below.
Resources
FamilieSCN2A creates and curates resources from trusted partners to help families thrive and to inform clinicians, teachers, and other professionals involved in the care of those affected by SCN2A-related disorders. Check out this helpful info!