rare genetic disorder support,

Brooks's Birthday Club!

Brooks’s Birthday Club is in memory of Brooks Thomas Richter who gained his angel wings on his 3rd Birthday. Brooks was a true warrior who loved birthdays although he only was on earth for three. He loved being surrounded by his family and friends; and we loved celebrating what an amazing, strong, and resilient boy he was. Our hope is to provide a smile to the warrior receiving the birthday surprise and to know that they are loved fiercely by so many.

— The Richter Family

Your child will receive a birthday card on their birthday and possibly even a little extra something special! Also, with your permission, we will do a special shout-out posting on social media for their birthday. Sign up today!

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scn2a gene mutation research

SCN2A Family Event Grant

The FamilieSCN2A Foundation is proud to introduce to our community The SCN2A Family Event Grant, which was created to intentionally bring SCN2A families together to cultivate a stronger community and deepen relationships. It is our intention that this grant program will give ownership to our SCN2A families, allowing them to create and coordinate a SCN2A Family Event of their choosing, paid for by the FamilieSCN2A Foundation. For more information or to apply, please contact

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family resources for scn2a syndrome

Warrior Wednesday

During Warrior Wednesdays, we welcome you to post pictures of your Warrior on our PRIVATE Facebook Discussion page and share a story about how they / you are "Fighting On." It can be as simple as: making it through another day or sharing how your Warrior has changed the lives of others. We love to hear stories that inspire and encourage others to FIGHT ON too! These stories help us connect with one another as a community and help spread awareness of SCN2A. Make sure to also use the hashtags: #CureSCN2A #SCN2AWarriorWednesday #SCN2A

Global Family Network

Our goal is to find a cure!

Did you or your child just receive a new diagnosis of SCN2A? If so, please know you are not alone!