SCN2A Warrior Riders

The Million Dollar Bike Ride is an event sponsored by the Orphan Disease Center of Penn. They help patient advocacy groups like ours double our impact by matching our fundraising dollars up to $30,000. This is an amazing opportunity to fund critical, life-saving research.

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The Million Dollar Bike Ride brings together rare disease teams, each representing a specific rare disease. The money raised by each team funds one or more research grants to study that specific disease. The Million Dollar Bike Ride brings over 750 cyclists and volunteers to Penn’s campus to ride either 13, 34, or 72 miles starting in the city, and ranging across the Greater Philadelphia region. In eight years, the MDBR’s 30+ teams have raised over $14 million to fund research grants on the diseases they represent. The ODC ensures that 100% of the funds raised goes towards these pilot grants, with no overhead taken out. After the event, grant applications will be open to the international scientific community — scientists from around the world will be eligible to apply.

FamilieSCN2A and the University of Pennsylvania Orphan Disease Center invite you to participate in the Million Dollar Bike Ride. This annual festival brings together rare disease families, friends and supporters to raise funds for rare disease research and to spread awareness of rare disease. This year’s event will be in person; however, there will be an option to fundraise and ride virtually. The event will take place in Philadelphia, PA on Saturday, June 10th. FamilieSCN2A is thrilled to have a team called SCN2A Warriors.

This is a unique opportunity for the SCN2A community to work together. It is also an extraordinary opportunity to join with other rare disease patients and organizations.

Our goal is to find a cure!

Did you or your child just receive a new diagnosis of SCN2A? If so, please know you are not alone!