Professionals listed on this site have treated multiple patients with SCN2A related disorders.


Disclaimer: FamilieSCN2A Foundation does not endorse any particular care provider or center and provides this list only as a service to the community. Not all of the professionals and institutions listed on this site have the same treatment approach. Your decision to select a particular health care provider and/or treatment option is yours alone, and FamilieSCN2A Foundation bears no responsibility for the care provided by any professional listed on this site or for outcome of any treatment option you may select.

Criteria: Professionals listed on this site have treated patients with SCN2A related disorders and/or related ion channelopathies and many have been recommended by their patients’ families. All recommended providers will be added to the list. If, however, an initial recommendation is withdrawn, or if FamilieSCN2A Foundation receives complaints about a particular professional from families who have first-hand experience with that individual, then FamilieSCN2A Foundation may, in its discretion, elect to remove that professional from the site.

Other Ways to Get Involved

Whatever you decide, please let us know. We are here to support you with ideas, resources and more. Check out the FamilieSCN2A Fundraising Page on facebook to see how others have helped.


FUNdraising is not only about money, it also raises public awareness of SCN2A and the issues around rare diseases in general.

Raise Awareness

Share your story with friends and family, in private and/or through social media. Share our website with them.


Make a tax deductible donation directly to the FamileSCN2A Foundation to be used for raising awareness, research and supporting families

Raise Funds

Sign up with Amazon Smiles and iGive, automated programs that donate a portion of online sales to charity.

Have a Party!

There are many direct sales vendors who would be happy to do a fundraiser for you.

Our goal is to find a cure!

Did you or your child just receive a new diagnosis of SCN2A? If so, please know you are not alone!