Download PDF    Donate Now


We can now receive donations via text message! Simply text SCN2A or CURESCN2A to 443-21 and follow the secure link. Message & Data rates may apply. Donations can be made as one-time or reoccurring monthly. It's easy, quick and secure!

The FamilieSCN2A Foundation is an organization created by parents of children diagnosed with rare forms of Epilepsy and Autism as a result of a change in the SCN2A gene. Our vision is to find effective treatments and a cure for SCN2A disorders. Our mission is to improve the lives of those affected by SCN2A related disorders through clinical research, public awareness, early detection, patient advocacy, effective treatments, and family support. Our goal is to find a cure!

The FamilieSCN2A Foundation believes research is our best hope for new treatments and eventually finding a cure for SCN2A associated epilepsies. We are a registered 501(c)(3) organization, so your donations are tax deductible!

Your generous donations will go directly toward research, awareness, and to provide educational and emotional support for patients and families by connecting them with other families affected by SCN2A.

A cure for SCN2A can be a reality. However, the cost of finding a cure is expensive. Your donation can help save those suffering from the effects of SCN2A. Every bit counts!


SCN2A is a rare genetic disorder and people/families affected by this diagnosis have few places to turn for continued support year after year. The FamilieSCN2A Foundation offers hope and support throughout a patient’s lifelong journey with SCN2A related disorders. The FamilieSCN2A Foundation guarantees patients and families have access to the tools and support they need to assure the best quality of care for their loved one. Examples of how the FamilieSCN2A Foundation supports members is by: funding research for treatments and a cure; through family support and advocacy programs; by hosting educational conferences and workshops; and by offering support for bereaved families.

Words we so often hear are: “I wish I could do more” from the thoughtful people who support the FamilieSCN2A mission. In truth, you can do more for the future of SCN2A and the future of our community through carefully planned gifts. There are many ways you can leave a legacy and help sustain the FamilieSCN2A Foundation, while providing significant tax benefits for your family and heirs. In addition to an outright tax-deductible cash gift, there are other ways you can support our mission:

  • a bequest in your Will or living trust
  • a beneficiary designation on a life insurance policy, 401(k) plan or IRA
  • an endowment
  • gifts of stock or other assets
  • life estate gifts or bargain sale gifts

In the event you choose to name the FamilieSCN2A Foundation in your Will or other estate planning documents, please include the following information:

The FamilieSCN2A Foundation, is a nonprofit corporation, organized and existing under the laws of the State of Massachusetts and with the address of P.O. Box 82, East Longmeadow, MA 01028. Tax identification number: 47-3169795

If you decide to give to the FamilieSCN2A Foundation, please contact us to let us know ( so we can show our appreciation for your generosity.
The FamilieSCN2A Foundation has partnered with TD Ameritrade to accept stocks and shares as donations. Donor's must have their broker reach out to or to complete the transfer.
“Small acts, when multiplied by millions of people, can transform the world.” - Howard Zinn

It may seem impossible for a little spare change to make an impact, but consider this; If 500 people donate $10.00 of spare change each month – it adds up to $5,000 a month, or $60,000 a year! That’s enough for FamilieSCN2A Foundation to do so much good. Now there’s a simple and painless way to donate your spare change. FamilieSCN2A Foundation is thrilled to partner with Coin Up, a revolutionary mobile donation app that virtually rounds up your credit or debit card transactions to the next dollar, and automatically donates your spare change to FamilieSCN2A Foundation every month. You can even set a monthly limit so that your donations never exceed that amount!

You can Coin Up in 3 Easy Steps:
1. Download the (free) CoinUp App from the Apple Store OR visit
2. Select FamilieSCN2A Foundation as your charity
3. Link your bank card & set a monthly limit Download the Coin Up app today!


Your link:

Number: 855-500-RIDE (7433) – Your donors can call immediately to donate


Donate your car, truck, motorcycle, RV, or boat to our nonprofit organization by simply completing the form below and we'll reach out to you to arrange the pick-up of your vehicle donation, at no cost to you. You may qualify for a tax deduction while supporting a cause that is near and dear to your heart!

Vehicle donation pick-up is always free to you and most vehicles can be picked up within 24-72 hours. You'll receive an initial car donation receipt upon pick-up and then our team will work to turn your car into cash to support our cause. Once your vehicle is sold, we will provide you proper tax forms in time to file. Our friendly Donor Support Representatives are here 7 days a week to assist throughout the process.

For more information about our nonprofit organization, please visit our website link below. Thank you for your support!

Donations can also be mailed to:

FAMILIESCN2A, P.O. Box 82, East Longmeadow, MA 01028.
FamilieSCN2A is a registered 501(c)(3) organization.

 Shop With Us on Amazon  Shop With Us on  Donate using PayPal

Ways To Contribute

Whatever you decide, please let us know. We are here to support you with ideas, resources and more. Check out the FamilieSCN2A Fundraising Page on facebook to see how others have helped.


FUNdraising is not only about money, it also raises public awareness of SCN2A and the issues around rare diseases in general.

Raise Awareness

Share your story with friends and family, in private and/or through social media. Share our website with them.


Make a tax deductible donation directly to the FamileSCN2A Foundation to be used for raising awareness, research and supporting families

Raise Funds

Sign up with Amazon Smiles and iGive, automated programs that donate a portion of online sales to charity.


Set up your own ‘First Giving’ page through the foundation to collect online donations.

Have a Party!

There are many direct sales vendors who would be happy to do a fundraiser for you.

Our goal is to find a cure!

Did you or your child just receive a new diagnosis of SCN2A? If so, please know you are not alone!