• Born: July 31, 2017 | Variant: c.1106_1109deICCTT
  • Autism Spectrum Disorder, Global Developmental Delay

Hi, I'm Henry from Freeport, Maine.

I love holding hands.

I'm from Maine, where I live with my Mom, Dad, my big sister Cora, little brother Dominic and our bouncing Jack Russel Terrier puppy,Murphy. I go to a special preschool because I was diagnosed with SCN2A related Autism Spectrum Disorder. I also have Global Developmental Delay and am currently non-verbal, though I am working very hard to communicate with my family, friends and teachers in my own special way. I am a chicken nugget expert and I love all kinds of sweet treats, especially if it involves peanut butter and chocolate. I love watching bubbles float, birds in the sky, jumping on the bed and Puffin Rock.


Our goal is to find a cure!

Did you or your child just receive a new diagnosis of SCN2A? If so, please know you are not alone!