ZAYDEN

Zayden Hill
  • Born: Feb 20, 2020

Hi, I'm Zayden.

Zayden’s favorite person is his big sister

Everyone meet Zayden. Zayden is 2 years old and the sunshine on everyone’s rainy day. Zayden enjoys watching Cocomelon, playing with his sister, and playing with his toys. Around 18 months old, I noticed that Zayden was not meeting the average milestones that a child should be. He wasn’t talking at all, he had a lot of stimming behavior such as flapping his arms and shaking his head. Once Zayden reached 2 years old, he was screened for autism by his pediatrician and referred to the Neurodevelopmental Center. Around 15 months old, Zayden was diagnosed with level three autism. In October of 2022, Zayden started having seizures and was officially diagnosed with epilepsy in November. Zayden’s genetic testing showed that he has a deletion of his SCN2A gene.

Our goal is to find a cure!

Did you or your child just receive a new diagnosis of SCN2A? If so, please know you are not alone!