Hi, I'm Nikol from Kiev, Ukraine.

I like to sleep!

I live in Ukraine with my mom and dad, but I still was not at home. From birth until now (4 months) I havebeen in the hospital, in intensive care. I am diagnosed with epilepsy associated with SCN2A. As a result of this mutation, I have a severe convulsive disorder from birth. After two months, I had a high fever and respiratory failure requiring additional ventilation. We believe in a miracle!

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