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"With the match we raised a total of $61,280!"
The University of Penn Orphan Disease Center will officially launch the grant program on August 15th with a RFA for research proposals!
WHAT IS MILLION DOLLAR BIKE RIDE
The Million Dollar Bike Ride brings together rare disease teams, each representing a specific rare disease. The money raised by each team funds one or more research grants to study that specific disease. The Million Dollar Bike Ride brings over 750 cyclists and volunteers to Penn’s campus to ride either 13, 34, or 72 miles starting in the city, and ranging across the Greater Philadelphia region. In eight years, the MDBR’s 30+ teams have raised over $14 million to fund research grants on the diseases they represent. The ODC ensures that 100% of the funds raised goes towards these pilot grants, with no overhead taken out. After the event, grant applications will be open to the international scientific community — scientists from around the world will be eligible to apply.
FamilieSCN2A and the University of Pennsylvania Orphan Disease Center invite you to participate in the Million Dollar Bike Ride. This annual festival brings together rare disease families, friends and supporters to raise funds for rare disease research and to spread awareness of rare disease. This year’s event will be in person; however, there will be an option to fundraise and ride virtually. The event will take place in Philadelphia, PA on Saturday, June 10th. FamilieSCN2A is thrilled to have a team called SCN2A Warriors.
This is a unique opportunity for the SCN2A community to work together. It is also an extraordinary opportunity to join with other rare disease patients and organizations.