MILLION DOLLAR BIKE RIDE

Awareness Day

EVENT DETAILS

WHEN: Saturday, June 11th, 2022

WHERE: Philadelphia, PA

HOW: In person or virtually

NOTE: 100% of registration and fundraising dollars will go towards SCN2A specific research with up to a $30,000 MATCH!

Million Dollar Bike Ride

Our SCN2A Warriors Team will need in person riders and/or volunteers!

**Riders must be 16 years or older and volunteers 18 years or older**

Join the SCN2A WARRIORS IN PERSON

Cyclist with Fundraising:

The registration fee is $25 and requires a minimum fundraising commitment of $250. It is expected that the minimum is met by June 11th.

Step 1: Register!
Select SCN2A WARRIORS as your team! Get a free MDBR jersey and MDBR t-shirt!

Step 2: Set up Fundraising Page
If participating for the 1st time: After registration you will be asked to create your individual fundraising page using Penn GivingPages. Then just share your fundraising page with your friends and family!

Step 3: Share your Fundraising Page!

Cyclist without Fundraising:

Early Bird Registration Fee: $60
After April 1st: $80
Day of Ride: $100

100% of your registration will go towards SCN2A research!

Step 1: Register!
Select SCN2A WARRIOR as your team!

BE A VIRTUAL RIDER or FUNDRAISING TEAM

Virtual Rider With Fundraising:

No Registration Fee, but a donation of $10 or more is requested. 100% of your registration will go towards SCN2A research!

Step 1: Register!
Select SCN2A WARRIORS as your team. Get a free MDBR jersey and MDBR t-shirt!

Step 2: Set up Fundraising Page
If participating for the 1st time: After registration you will be asked to create your individual fundraising page using PennGivingPages. Then just share your fundraising page with your friends and family!

Step 3: Share your Fundraising Page!

Fundraising Team:

No Registration Fee, but a donation of $10 or more is requested. 100% of your registration will go towards SCN2A research!

Step 1: Set up Fundraising Page
If participating for the 1st time: After registration you will be asked to create your individual fundraising page using PennGivingPages. Then just share your fundraising page with your friends and family!

Step 2: Share your Fundraising Page!

WHAT IS MILLION DOLLAR BIKE RIDE

The Million Dollar Bike Ride brings together rare disease teams, each representing a specific rare disease. The money raised by each team funds one or more research grants to study that specific disease. The Million Dollar Bike Ride brings over 750 cyclists and volunteers to Penn’s campus to ride either 13, 34, or 72 miles starting in the city, and ranging across the Greater Philadelphia region. In eight years, the MDBR’s 30+ teams have raised over $14 million to fund research grants on the diseases they represent. The ODC ensures that 100% of the funds raised goes towards these pilot grants, with no overhead taken out. After the event, grant applications will be open to the international scientific community — scientists from around the world will be eligible to apply.

FamilieSCN2A and the University of Pennsylvania Orphan Disease Center invite you to participate in the Million Dollar Bike Ride. This annual festival brings together rare disease families, friends and supporters to raise funds for rare disease research and to spread awareness of rare disease. This year’s event will be in person; however, there will be an option to fundraise and ride virtually. The event will take place in Philadelphia, PA on Saturday, June 11th. FamilieSCN2A is thrilled to have a team called SCN2A Warriors.

This is a unique opportunity for the SCN2A community to work together. It is also an extraordinary opportunity to join with other rare disease patients and organizations.

Our goal is to find a cure!

Did you or your child just receive a new diagnosis of SCN2A? If so, please know you are not alone!