We are proud to announce the 2nd Annual Golf Tournament to raise money for SCN2A and The FamilieSCN2A Foundation 501(c)(3). Please join us on Monday, August 29th at Harvest Hill Golf Course in Orchard Park, NY.
Individuals that carry a mutation in the SCN2A gene typically develop a range of neurological conditions, including but not limited to: 1. severe early-onset (pediatric) epilepsies, 2. autism spectrum disorder, and 3. movement disorders. The symptoms a child experiences and the severity of the disorder can vary widely and will depend on the particular SCN2A-related mutation the child has.
The Egan family (whose 5 year old daughter Harper is afflicted with this condition), and golf committee members have a mission with this tournament to bring awareness, and much needed financial support to drive a CURE for SCN2A.
It’s the passionate and committed family members, companies, and individuals who will make a difference in the research efforts to help fight this disease. With your help, we will positively impact and strive to improve the lives of all who have been affected.
If you cannot attend our event, please consider a tax-deductible donation to our organization. Your support is appreciated.
Ways To Contribute
Whatever you decide, please let us know. We are here to support you with ideas, resources and more. Check out the FamilieSCN2A Fundraising Page on facebook to see how others have helped.
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