GOLF FORE SCN2A

Golf Fore SCN2A

We are proud to announce the 2nd Annual Golf Tournament to raise money for SCN2A and The FamilieSCN2A Foundation 501(c)(3). Please join us on Monday, August 29th at Harvest Hill Golf Course in Orchard Park, NY.

Individuals that carry a mutation in the SCN2A gene typically develop a range of neurological conditions, including but not limited to: 1. severe early-onset (pediatric) epilepsies, 2. autism spectrum disorder, and 3. movement disorders. The symptoms a child experiences and the severity of the disorder can vary widely and will depend on the particular SCN2A-related mutation the child has.

The Egan family (whose 5 year old daughter Harper is afflicted with this condition), and golf committee members have a mission with this tournament to bring awareness, and much needed financial support to drive a CURE for SCN2A.

It’s the passionate and committed family members, companies, and individuals who will make a difference in the research efforts to help fight this disease. With your help, we will positively impact and strive to improve the lives of all who have been affected.

 Register Now

If you cannot attend our event, please consider a tax-deductible donation to our organization. Your support is appreciated.

Ways To Contribute

Whatever you decide, please let us know. We are here to support you with ideas, resources and more. Check out the FamilieSCN2A Fundraising Page on facebook to see how others have helped.

FUNdraising

FUNdraising is not only about money, it also raises public awareness of SCN2A and the issues around rare diseases in general.

Raise Awareness

Share your story with friends and family, in private and/or through social media. Share our website with them.

Donate

Make a tax deductible donation directly to the FamileSCN2A Foundation to be used for raising awareness, research and supporting families

Raise Funds

Sign up with Amazon Smiles and iGive, automated programs that donate a portion of online sales to charity.

Have a Party!

There are many direct sales vendors who would be happy to do a fundraiser for you.

Our goal is to find a cure!

Did you or your child just receive a new diagnosis of SCN2A? If so, please know you are not alone!