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Hi, I'm Zachariah!

Read my story...

Hi everyone, I’m Zachariah but lots of people call me Zach.

I love to dance and currently my favorite song is 'Old MacDonald Had a Farm' so I can shout all the animal noises as loudly as possible!

I was diagnosed with SCN2A related epilepsy after starting having seizures at 3 days old. My particular SCN2A is denovo, and after a very rough start, I’ve had a good period so far without seizures interrupting my fun and learning. I am now loving nursery and take artwork home daily for my parents who’ve officially run out of space to stick up my masterpieces! I love to play shops, read stories and jump in puddles.

Meet Other SCN2A Warriors!