SCN2A Family & Professional Conference
Bringing the SCN2A community together has a life-changing impact on all who attend.
The most exciting and important event of the year is the world’s largest SCN2A-related gathering of families, researchers, clinicians, and industry.
There’s nothing quite like being at the SCN2A Family & Professional Conference and Research Roundtable—surrounded by families who understand this journey, scientists and clinicians working tirelessly toward breakthroughs, and advocates and volunteers determined to make a difference. Everywhere you look, you see people moving mountains together: sharing stories, exchanging knowledge, and building connections that go far beyond the conference walls. It’s a space where hope is renewed, ideas take root, and the strength of our community shines brighter than ever.
- Wednesday, July 29 (8:00 - 5:00)
Professional Registration & Research/Professional Roundtable (professionals only)
- Wednesday, July 29 (2:00-5:00)
General Family Registration and Packet Pick-Up
- Thursday, July 30 (8:00-4:00)
General Session Day 1 followed by Remembrance & Awards Dinner
- Friday, July 31 (8:00-4:00)
General Session Day 2 followed by Dance Party Dinner
- Saturday, Aug 1
Departures / Optional Family Fun Day on Your Own
Please note: conference registration does not include hotel reservations. On site rooms fill quickly, so we encourage you to book your hotel accommodations as soon as possible.
Hyatt Regency Grand Cypress Resort
1 Grand Cypress Blvd.
Orlando, Florida 32826
USA
Reserve Your Room HERE
On-site rooms fill quickly, so we encourage you to reserve your room as soon as possible.
On-site rooms fill quickly, so we encourage you to reserve your room as soon as possible.
To become a Sponsor, email Leah Myers at leah.schust@scn2a.org
The FamilieSCN2A Foundation has a no-solicitation policy covering all of our conferences and expositions. We do not allow solicitation at our events by any attendees or unauthorized parties without prior written permission to the FamilieSCN2A Foundation. This policy includes, but is not limited to the following unauthorized activities:
Prohibited Activities:
- Unauthorized receptions & parties (including off-site events)
- Unauthorized exhibits, mobile exhibits & hospitality suites
- Unauthorized membership recruitment activities
- Unauthorized promotion of non-FamilieSCN2A Foundation events
- Unauthorized research recruiting
- Unwelcome advances toward event participants or the FamilieSCN2A Foundation Board Members
- Unauthorized on-site distribution of printed or electronic materials including literature, signs, flyers, invitations, tickets, forms, etc. (except business cards)
- Any person and/or organization found to be violating this policy may be expelled from the event. No Refunds.
- Egregious and/or multiple violations of this policy may result in disqualification from future events at the discretion of the FamilieSCN2A Foundation.
Travel scholarships are need-based and available to families with a loved one diagnosed with an SCN2A-related disorder, as confirmed by a genetic report.
Awards of up to $1,200 may help offset eligible conference-related expenses, including registration, hotel, and travel. Because funds are limited and made possible through generous donations, families are encouraged to request only the amount they truly need.
Scholarships are provided as reimbursements after the conference once receipts are submitted.
Applicants will be notified on or before May 30, 2026.
Before applying, we also encourage families to explore outside grant opportunities that have previously supported conference attendance, as these may be a helpful first step in securing additional funding.
Past Conferences
Since our founding in 2015, we have hosted seven conferences in person or hybrid and two virtually. Travel can be challenging for those with SCN2A-related disorders, so the conference sites rotate around the country. Check out our history of bringing people together.
- 2016—Chicago, IL
- 2017—Wilmington, DE
- 2019—Seattle, WA
- 2020—Rx: Hope Virtual Series
- 2021—Rx: Hope Table Talks
- 2022—Columbus, OH
- 2023—Boston, MA
- 2024—Anaheim, CA
- 2025—Denver, CO
- 2026—Orlando
