The FamilieSCN2A Foundation is collaborating with the Shay Emma Hammer Research Foundation and the SCN8A community on the Amma App, a research initiative designed to better understand seizures, medications, and treatment experiences in people living with SCN2A-related disorders..
Why Amma?
What happens between clinic visits matters. By tracking seizures, medications, and changes over time, families can help researchers build a clearer picture of life with an SCN2A-related disorder and uncover patterns that may inform future research and treatment.
Your Experience Matters
Every family’s experience adds to what we know about SCN2A. Participating in the Amma App is one more way our community can turn everyday experiences into meaningful data and help move research forward.
Every family’s experience adds to what we know about SCN2A. Participating in the Amma App is one more way our community can turn everyday experiences into meaningful data and help move research forward.
Our friends at the Shay Hammer Research Foundation team are helping SCN2A families get started with the Amma App.
Email their team at info@scn8a.net to get started.
Are You Enrolled in DRAGONFLY?
The DRAGONFLY Registry is helping build a clearer picture of SCN2A-related disorders by bringing together information from individuals and families across our community. If you haven't enrolled yet, now is a great time to add your experience to this growing body of research.