Events
Throughout the year, FamilieSCN2A hosts and encourages opportunities for the SCN2A community to come together.
SCN2A Warrior Challenge
Every October, SCN2A Warriors around the world come together to celebrate the FamilieSCN2A Foundation's anniversary by creating a customized event in their own communities. Whether it's a walk, run, roll, stroll, or hike, families have a blast raising awareness of SCN2A-related disorders and funds to further the Foundation's mission.

5th Annual Golf Fore SCN2A
Set the SCeNe 2 A Cure for SCN2A!
Join us on August 25, 2025, at the Cloverbank Country Club in Hamburg, NY, to support The FamilieSCN2A Foundation's mission to fund vital research for SCN2A-related disorders (SRDs). The Egan Family and Golf Committee are dedicated to making a difference by hosting this tournament in honor of their SCN2A Warrior, Harper, age 7.

2025 International SCN2A
Family & Professional Conference
The most exciting and important event of the year is the world’s largest SCN2A-related gathering of families, researchers, clinicians, and industry. Bringing the SCN2A community together has a life-changing impact on all who attend.
There’s nothing quite like being at the SCN2A Family & Professional Conference—surrounded by families who understand this journey, scientists and clinicians working tirelessly toward breakthroughs, and advocates and volunteers determined to make a difference. Everywhere you look, you see people moving mountains together: sharing stories, exchanging knowledge, and building connections that go far beyond the conference walls. It’s a space where hope is renewed, ideas take root, and the strength of our community shines brighter than ever.
We’ve captured some of those unforgettable moments in our 2025 Conference Recap Video—from inspiring sessions and community celebrations to the quiet, meaningful connections that make this event so special. You might even spot a little hint about where we’ll gather next year!
Annual Campaign
Each year on February 24th, SCN2A Awareness Day kicks off our Annual Campaign to support our programs and operations allowing the FamilieSCN2A Foundation continues to make a transformational impact on the lives of families living with an SCN2A-related disorder (SRD).
Discover Our Programs
The FamilieSCN2A Foundation provides a variety of programs to support the needs of the SCN2A community.