Resources
The FamilieSCN2A Foundation creates and curates resources from trusted partners to help families thrive and to inform clinicians, teachers, and other professionals involved in the care of those affected by SCN2A-related disorders.
SCN2A Info Sheets and Educational Materials
Infographics and brochures
SCN2A plain language summaries
Educational videos
Glossaries
School Resources
Special education
School Resources for Children with Complex Health Needs
IEPs (Individual Educational Plans)
Accommodations / 504 Plans: Epilepsy
Accommodations / 504 Plans: Autism
School nurse resources
- SHNIC - Resources For School Nurses
- Factsheet: Vagus Nerve Stimulation
- Procedural Guidance - Vagus Nerve Stimulation magnet
- Emergency Action - Vagus Nerve Stimulation
- Factsheet: Enteral Feeding Tubes
- Procedural Guidance - Enteral Nutrition Feeding Pumps
- Procedural Guidance - Gastrostomy Button Replacement
Epilepsy
Autism
Cerebral/Cortical Visual Impairment (CVI)
Medical Resources
Diagnosis
Creating a Care Team
Community resources
Resources for Professionals
Emergency & Safety Resources
Emergency planning
Autism
Epilepsy
Research Resources
Shortcut to our research resources
Patient & Family Support Resources
FamilieSCN2A support programs
Federal and state information & assistance
Transitioning from childhood to adulthood
Other organizations with helpful resources
- Child Neurology Foundation
- Courageous Parents Network
- Parent to Parent
- DEE-P Connections
- Association of University Centers on Disability
Travel Resources
Medical transportation
Traveling with medically-fragile children
Autism-friendly Cruises (shared without explicit endorsement)
