Caregivers
Caring for a loved one with an SCN2A-related disorder is a journey filled with challenges as well as moments of unexpected joy. In the midst of daily routines and responsibilities, it's often the small, meaningful moments that leave lasting impressions - a brief smile, a shared laugh, or a quiet moment of connection.
The FamilieSCN2A Foundation understands both the hardships and the beauty that come with caregiving. We're here to celebrate these meaningful moments with you and provide the support you need to keep finding joy along the way to better treatments and cures.
Newly
Diagnosed
Learning that someone you care for has an SCN2A-related disorder may be overwhelming. We understand – we have been there and want you to know you are not alone.
Get Involved!
“Knowing that I am helping others, even in a small way, gives my life purpose and joy beyond caring for my child with an SRD.” – Alex’s Mom
Education & Support
SCN2A Multidisciplinary Centers
SCN2A Multidisciplinary Centers (MDC) are specialized clinical sites providing coordinated care and integrated research opportunities for those affected by SCN2A-related disorders with a goal of improving treatment and quality of life.
Glossary of SCN2A-Related Terms
Learning how to talk and read about SCN2A and SCN2A-related disorders may require some new vocabulary. This glossary will help!
Resources
This list of carefully curated links to a variety of resources will help educate and inform the SCN2A community.