What to Expect When Considering a Clinical Trial: Clinical Research 101
Thinking about participating in a clinical trial, but not sure what it really means for your child and your family?
From Advocacy to Action: SCN2A Now Has Its Own ICD-10 Code
The FamilieSCN2A Foundation is thrilled to announce that advocacy efforts with the CDC over the last four years have resulted
What Baby KJ’s Breakthrough Means to Us
Town Hall Presentation by Shawn Egan, PhD and CSO, which is recorded here: Click Here There is excitement in the rare
Everlee’s Story: A Family’s Journey of Strength, Love, and Hope
The story of Everlee Robles is one of strength, love, and the unbreakable bond that holds a family together in