2022 SUMMER SEMINAR

July 28 - 29 Columbus, OH

scn2a
~ This conference has been made possible by generous funding from the following organizations ~
scn2a

Agenda & Speakers

The FamilieSCN2A Foundation is currently working on the agenda and presenters and we will provide a final agenda as it becomes finalized. Topics that are being considered for the conference include:

  •  SCN2A 101
  •  Basics of Genetics, what your child's variant means
  •  Clinical Management & Comorbidities of SCN2A Disorders
  •  Pharmacology update on best drugs for SCN2A
  •  Autism & SCN2A
  •  Therapies that can help your child today
    •  OT
    •  PT
    •  ABA
  •  Communication for the non verbal child / ACC
  •  Cortical Visual Impairment in SCN2A
  •  Clinical Trial Readiness Study
  •  Lab updates from around the world / the SCN2A Landscape
  •  Gene Therapy, understanding the techniques & process behind making this a reality
  •  SCN2A Research Pipeline Report

Exhibitor

Corporate Exhibitor Opportunities - All exhibitor fees are tax deductible donations

PLATINUM LEVEL $25,000
  •  Acknowledgement on select conference materials as Platinum Level Hero
  •  Recognition on all conference invitations, media releases and electronic newsletters
  •  Corporate logo placed on conference registration website with link to Exhibitor's website
  •  Visible signage at event with recognition as Platinum Hero
  •  Naming rights as title Hero for Family & Professional Dinner
  •  One (1) exhibitor space
  •  Conference registration and dinner attendance for five attendees
GOLD LEVEL $15,000
  •  Acknowledgement in select conference materials as Gold Level Hero
  •  Recognition on all conference invitations, media releases and electronic newsletters
  •  Corporate logo placed on conference registration website with link to Exhibitor's website
  •  Visible signage at event with recognition as Gold Hero
  •  One (1) exhibitor space
  •  Conference registration and dinner attendance for four attendees
SILVER LEVEL $10,000
  •  Acknowledgement in select conference materials as Silver Level Hero
  •  Recognition on all conference invitations and electronic newsletters
  •  Corporate logo placed on conference registration website with link to Exhibitor's website
  •  Visible signage at event with recognition as Silver Hero
  •  One (1) exhibitor space
  •  Conference registration and dinner attendance for three attendees
BRONZE LEVEL $5,000
  •  Acknowledgement in select conference materials as Bronze Level Hero
  •  Corporate logo placed on conference registration website with link to Exhibitor's website
  •  Visible signage at event with recognition as Bronze Hero
  •  One (1) exhibitor space
  •  Conference registration and dinner attendance for two attendees
Become an Exhibitor Exhibitor Levels

Hotel Information

The Hilton Columbus at Easton is SOLD OUT.

We now have a 2nd hotel close by:
Aloft Columbus Easton
4176 Brighton Rose Way, Columbus, Ohio 43219

To guarantee rate and room type, please ensure the name of the group, arrival date, and any other information needed is given at the time of reservation.

Your Group Name is SCN2A Summer Seminar (This is the name that an attendee must ask for when calling to make a reservation)

The first date of arrival is: 07/27/2022
The last date of departure is: 07/30/2022

Guests have until 06/27/2022 to make reservations for this group.

BOOK NOW

Things to Do

For additional information on Columbus click the link below:

More Info

Past Conferences

Take a look at our list of past conferences. The FamilieSCN2A Foundation holds our Family & Professional Conference every 2 years.

  •  1st Conference was held in Chicago, IL at Lurie Children’s Hospital in 2016
  •  2nd Conference was held in Wilmington, Delaware at Nemours Alfred I. duPont Hospital for Children
  •  3rd Conference was held in Seattle, WA in 2019
  •  4th Conference was held virtually - 2020 Rx: Hope Virtual Series
  •  5th Conference was held virtually - 2021 Rx: Hope Table Talks
Watch Videos

SCN2A Family Scholarship Application

  • 1) The Scholarships are for families with a child diagnosed on a genetic report with SCN2A. A genetic report must be included.
  • 2) Scholarship may cover up to 2 nights in the hotel, one family registration fee, and/or travel assistance up to $200 for domestic and up to $500 for international flights.
  • 3) You will be notified whether your application has been selected for sponsorship sometime between May 15th - May 30th, 2022
  • 4) If approved the FamilieSCN2A Foundation will be responsible to reserve the hotel room. If you would like to stay at the Hilton at Easton for additional nights, that will be at the applicant's own expense. Scholarships for the Hilton at Easton are for July 28th and 29th.
  • 5) Children are encouraged to attend. Formal childcare is not included however we will have extra, adult volunteers that can be an extra set of hands. There will be snacks, drinks and activities in the hospitality room for children with SCN2A and their siblings. All children must be accompanied by a caregiver at all times.
Apply Here

Frequently Asked Questions

The FamilieSCN2A Foundation holds our Family & Professional Conference every 2 years - however this year we are adding in a special conference called SCN2A Summer Seminar, on our off year to focus on families!

     

Our goal is to find a cure!

Did you or your child just receive a new diagnosis of SCN2A? If so, please know you are not alone!