Create a Personal Page for your child! These personal pages are a way for you to share your child's story. Once created you can share the page with friends and family to help raise awareness about Autism and Epilepsy.
Pages can also be used to help raise funds for The FamilieSCN2A Foundation. Your generous donations will go directly toward research, awareness, and to provide educational and emotional support for patients and families by connecting them with other families affected by SCN2A.
Fill in the form below to begin creating your Personal Page. Once submitted, you will receive a link to your child's Personal Page. All information submitted will be processed within two weeks of being received.
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International SCN2A Awareness Day
What’s the significance of SCN2A Day being 2/24 (February 24th)?
Located on the long (q) arm of chromosome 2 at position 24.3 the SCN2A is sodium channel, voltage gated, type II alpha subunit. Sodium ion channels are proteins in cells that allow sodium to pass to the inside. Sodium ion channels play a key role in a cell's ability to generate and transmit electrical signals. When there is a deletion or mutation of this gene it has been identified to cause autism, epilepsy and other neurological issues like movement disorders, dystonia and dsyautonomia to name just a few.
SCN2A Awareness Day will help us accomplish the FamilieSCN2A Foundation mission to improve the lives of those affected by SCN2A related disorders through research, public awareness, family support and patient advocacy.
Join our Birthday Club!
It's so much fun as a kid getting mail addressed just to you! Sign up today for our Birthday Club and your child will receive a a birthday card on their birthday and possibly even a little extra something special too! Also, with your permission we will even do a special shout out posting on social media for their birthday (this part is not required to to join the Birthday Club). So what are you waiting for? Sign up today!Sign Up Now
Sign Up for our Newsletter & Emails!
Did you or your child just receive a new diagnosis of SCN2A? If so, please know you are not alone! We are here to help you connect with others across the world who have a diagnosis of SCN2A, support you through this process, and keep you updated on current research. Stay connected with us and sign up for our emails and newsletter today!Sign Up Now
SCN2A Family Event Grant
The FamilieSCN2A Foundation is proud to introduce to our community The SCN2A Family Event Grant, which was created to intentionally bring SCN2A families together to cultivate a stronger community and deepen relationships. It is our intention that this grant program will give ownership to our SCN2A families, allowing them to create and coordinate a SCN2A Family Event of their choosing, paid for by the FamilieSCN2A Foundation. For more information or to apply, please contact firstname.lastname@example.orgEmail Us
During Warrior Wednesdays, we welcome you to post pictures of your Warrior on our PRIVATE Facebook Discussion page and share a story about how they / you are "Fighting On." It can be as simple as: making it through another day or sharing how your Warrior has changed the lives of others. We love to hear stories that inspire and encourage others to FIGHT ON too! These stories help us connect with one another as a community and help spread awareness of SCN2A. Make sure to also use the hashtags: #CureSCN2A #SCN2AWarriorWednesday #SCN2AAsk to join Facebook Group