The Patient Assistance Grant (PAG) program opens on International SCN2A Awareness Day, February 24.

Items that are currently covered under this program include:

» Durable medical goods (such as wheelchairs, orthotics, cooling vests, etc.)
» Disposable medical equipment not covered by insurance (such as diapers, wipes, first aid)
» Therapy equipment
» Therapies not covered by insurance (such as therapeutic horseback riding, aquatic therapy, etc)
» Communication devices such as iPads
» Costs associated with implementation of the ketogenic diet
» Travel grants to access specialty medical care

The program does not cover medical or pharmaceutical co-pays, respite assistance or service animals.

Denial letters or documentation from insurance companies are required.

If you are applying for an iPad, please note
 the PAG program only covers either an iPad (128GB, wifi only) or an iPad mini (256GB, wifi only). If you were granted funding for an iPad previously, there is a 3 year minimum before you may reapply for a new one. We do not provide AppleCare insurance, but you may choose to add it later at your own cost. We highly suggest that you purchase a durable cover or add it to your application to help protect the device.

If the equipment you are interested in is not listed above or you are requesting more than 3 items, please contact us with more details on the requested item and we can review its eligibility.

Our grant application period begins each year on International SCN2A Awareness Day, February 24, and we cannot accept applications prior to the start of each grant cycle. When funds are depleted for the year, the program will be closed until the next application cycle and notification will be placed on our website. Applications will be reviewed and approved on a first-come, first-served basis. An applicant may apply once per grant cycle with a yearly maximum of $1,500 and a life-time award maximum of $5,000.

Your application packet should include the following documentation:

» Completed application
» A recent letter from the child’s physician or health care professional explaining the medical necessity of your request
» A letter of denial from the insurance provider stating that the requested equipment and/or service was denied (when possible)
» Any other documentation pertaining to the nature of your request. All information is kept confidential.

Applications that are incomplete or missing requested additional information will not be placed in queue for review until complete.  All applicants will receive an email stating approval or denial of their application. Denied applicants wishing to re-apply must provide additional documentation of a change of status in circumstances or that other alternatives have failed. We request up to 45 days to review your application.

By awarding these grants, FamilieSCN2A Foundation is making no recommendation to the appropriateness or safety of any particular piece of equipment or therapy in treating SCN2A Disorders. The FamilieSCN2A Foundation and its Board of Directors are not responsible for the safety and use of awarded equipment or therapies. Applicants are strongly urged to consult with their medical professionals and therapists regarding equipment and therapies that would be most beneficial for their situation. We will not divulge application information without written consent from the applicant or their legal guardian. We do ask that award recipients submit a photo showing the child using their equipment or therapy that we may use for the advertising purposes of this grant program. Children will only be identified by their first name and only with written consent of their guardian.

For questions on this program, please email Leah.

Our goal is to find a cure!

Did you or your child just receive a new diagnosis of SCN2A? If so, please know you are not alone!